{"id":3122,"date":"2018-10-22T23:59:14","date_gmt":"2018-10-22T21:59:14","guid":{"rendered":"http:\/\/streetdiamond.fr\/?p=3122"},"modified":"2019-11-15T23:57:59","modified_gmt":"2019-11-15T22:57:59","slug":"pourquoi-la-prise-en-charge-de-la-drepanocytose-nest-pas-a-la-hauteur","status":"publish","type":"post","link":"https:\/\/streetdiamond.fr\/index.php\/2018\/10\/22\/pourquoi-la-prise-en-charge-de-la-drepanocytose-nest-pas-a-la-hauteur\/","title":{"rendered":"Pourquoi la prise en charge de la dr\u00e9panocytose n&rsquo;est pas \u00e0 la hauteur?"},"content":{"rendered":"<p><iframe id=\"audio_iframe\" src=\"https:\/\/www.podbean.com\/media\/player\/axczq-9cd94e?skin=1&amp;download=1&amp;share=1&amp;auto=0&amp;fonts=Helvetica&amp;btn-skin=108\" width=\"100%\" height=\"100\" frameborder=\"0\" scrolling=\"no\" data-link=\"https:\/\/www.podbean.com\/media\/player\/axczq-9cd94e?skin=1&amp;download=1&amp;share=1&amp;auto=0&amp;fonts=Helvetica&amp;btn-skin=108\" data-name=\"pb-iframe-player\"><\/iframe><\/p>\n<p><strong>Nous recevions la pr\u00e9sidente l&rsquo;<a href=\"https:\/\/www.apipd.fr\/\"><em>Association pour l&rsquo;Information et la Pr\u00e9vention de la Dr\u00e9panocytose<\/em><\/a> : <span style=\"color: #ff7700;\"><em>Jenny Hippocrate Fixy<\/em><\/span>, accompagn\u00e9e du responsable du p\u00f4le communication : <span style=\"color: #ff7700;\"><em>Milan Corazza<\/em><\/span>. Ainsi que <span style=\"color: #ff7700;\">le rappeur am\u00e9ricain<em> Frank Knight<\/em><\/span>, premier artiste \u00e0 se mesurer \u00e0 la rubrique Show Me What You Got!<\/strong><\/p>\n<h5><strong>La dr\u00e9panocytose \u00e7a vous dit quelque chose ?<\/strong><\/h5>\n<p><span style=\"font-weight: 400;\">La dr\u00e9panocytose est une maladie chronique de prise en charge lourde dont le handicap cro\u00eet avec l\u2019\u00e2ge. Elle est li\u00e9e \u00e0 une mutation d\u2019un g\u00e8ne de l\u2019h\u00e9moglobine qui provoque an\u00e9mie et fatigue. Les crises effroyables, impact la vie personnelle et professionnelle. Elle peut imposer le recours aux antalgiques puissants comme la morphine.<\/span><\/p>\n<p><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400; color: #ff7700;\">Depuis maintenant 30 ans, \u00a0l&rsquo;APIPD lutte afin que le combat contre la dr\u00e9panocytose soit reconnu comme une priorit\u00e9 par les gouvernements.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Pour informer le grand public, r\u00e9colter des fonds afin d\u2019aider les malades et faire avancer la recherche, <span style=\"color: #ff7700;\">l\u2019association organise le concert de solidarit\u00e9 <\/span><\/span><span style=\"color: #ff7700;\"><em><span style=\"font-weight: 400;\">Drepraction<\/span><\/em><\/span><span style=\"font-weight: 400;\">.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Rendez-vous au Zenith de Paris pour 3H de show, le <span style=\"color: #ff7700;\">dimanche 28 octobre 2018<\/span> avec <\/span><span style=\"color: #ff7700;\"><em><span style=\"font-weight: 400;\">Kalash<\/span><\/em><\/span><span style=\"font-weight: 400;\">, <\/span><span style=\"color: #ff7700;\"><em><span style=\"font-weight: 400;\">Admiral T<\/span><\/em><\/span><span style=\"font-weight: 400;\">, <\/span><span style=\"color: #ff7700;\"><em><span style=\"font-weight: 400;\">K-reen<\/span><\/em><\/span><span style=\"font-weight: 400;\">,\u00a0<\/span><span style=\"color: #ff7700;\"><em><span style=\"font-weight: 400;\">Keblack<\/span><\/em><\/span><span style=\"font-weight: 400;\">, <\/span><span style=\"color: #ff7700;\"><em><span style=\"font-weight: 400;\">Chilla<\/span><\/em><\/span><span style=\"font-weight: 400;\">, <\/span><span style=\"color: #ff7700;\"><em><span style=\"font-weight: 400;\">Dosseh<\/span><\/em><\/span><span style=\"font-weight: 400;\">, <\/span><span style=\"color: #ff7700;\"><em><span style=\"font-weight: 400;\">13 Block<\/span><\/em><\/span><span style=\"font-weight: 400;\"> et bien d\u2019autres&#8230;<\/span><\/p>\n<div class=\"entry-content-asset videofit\"><iframe title=\"Pourquoi la prise en charge de la dr\u00e9panocytose n&#039;est pas \u00e0 la hauteur?\" width=\"720\" height=\"405\" src=\"https:\/\/www.youtube.com\/embed\/GgY2792Tn6w?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/div>\n<h5><strong>Show Me What You Got !<\/strong><\/h5>\n<p><span style=\"font-weight: 400;\">Mak Paro pr\u00e9sente la rubrique Actus et rumeurs et SWYG!<\/span><\/p>\n<p><span style=\"font-weight: 400;\">On re\u00e7oit le rappeur New-yorkais Frank Knight avant la sortie de son nouvel album G.P.K. (Ghetto Psalms of The Knight) le 19 octobre et son concert du 18 novembre au Pianos \u00e0 New-York.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Dans cette rubrique les protagonistes ont 10 min &#8230; et pas une de plus !<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400; color: #ff7700;\">10 min pour nous faire d\u00e9couvrir son entreprise, son association, son art, ses convictions &#8230;<\/span><span style=\"font-weight: 400;\"><br \/>\n<\/span><span style=\"font-weight: 400;\">10 min pour nous montrer ce qu\u2019ils ont dans le ventre !<\/span><\/p>\n<p><span style=\"font-weight: 400;\"><span style=\"color: #ff7700;\">Sp\u00e9cial guest<\/span> pour cette premi\u00e8re, <span style=\"color: #ff7700;\">la chanteuse am\u00e9ricaine <\/span><\/span><span style=\"color: #ff7700;\"><em><span style=\"font-weight: 400;\">Lea Anderson<\/span><\/em><\/span><span style=\"font-weight: 400;\">.<\/span><\/p>\n<div class=\"entry-content-asset videofit\"><iframe title=\"Franck Knight Poska Show Me What You Got\" width=\"720\" height=\"405\" src=\"https:\/\/www.youtube.com\/embed\/SVL4HKNKwYA?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/div>\n<h4><strong>Emission STREET DIAMOND du (13\/10\/2018)<\/strong><\/h4>\n<p><span style=\"font-weight: 400;\">Animateurs: Mak Paro, Kelly, Mlle AC, Manu Dorlis, Ma\u00efty Freeman, Kenny, Laurie Pezeron, Sharone Omankoy.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Radio RGB 99.2 FM et <em><strong><a href=\"https:\/\/streetdiamond.fr\/\">streetdiamond.fr<\/a><\/strong><\/em>.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Abonnez vous aux podcasts de Street Diamond sur<\/span>\u00a0<em><strong><a href=\"https:\/\/itunes.apple.com\/us\/podcast\/street-diamond\/id1180867618?mt=2\">Itunes<\/a><\/strong><\/em>, <em><strong><a href=\"https:\/\/www.deezer.com\/fr\/show\/55849\">Deezer<\/a><\/strong><\/em>, <em><strong><a href=\"https:\/\/open.spotify.com\/show\/7fX1ZMge3EEBJ2OoS9qYZy\">Spotify<\/a><\/strong><\/em>, etc&#8230;<\/p>\n<p><em><strong><a href=\"https:\/\/www.facebook.com\/streetdiamondradio\/\">Street Diamond\u00a0tous les samedis de 19H \u00e0 22H en direct<\/a><\/strong><\/em><\/p>\n<p><span style=\"font-weight: 400;\">Facebook :\u00a0<em><strong><a href=\"https:\/\/www.facebook.com\/streetdiamondradio\/\">Street Diamond (le samedi de 19h \u00e0 22h sur radio RGB)<\/a><\/strong><\/em><\/span><\/p>\n<p><span style=\"font-weight: 400;\">Photo : <em><strong><a href=\"https:\/\/www.dorlis-photography.com\/\">Dorlis Photography<\/a><\/strong><\/em><\/span><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Nous recevions la pr\u00e9sidente l&rsquo;Association pour l&rsquo;Information et la Pr\u00e9vention de la Dr\u00e9panocytose : Jenny Hippocrate Fixy, accompagn\u00e9e du responsable du p\u00f4le communication : Milan Corazza. Ainsi que le rappeur am\u00e9ricain Frank Knight, premier artiste \u00e0 se mesurer \u00e0 la rubrique Show Me What You Got! La dr\u00e9panocytose \u00e7a vous dit quelque chose ? La&#8230;<\/p>\n","protected":false},"author":1,"featured_media":3129,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"_kadence_starter_templates_imported_post":false,"_kad_post_transparent":"","_kad_post_title":"","_kad_post_layout":"","_kad_post_sidebar_id":"","_kad_post_content_style":"","_kad_post_vertical_padding":"","_kad_post_feature":"","_kad_post_feature_position":"","_kad_post_header":false,"_kad_post_footer":false,"_kad_post_classname":"","footnotes":""},"categories":[4,75,6,117],"tags":[285,836,289,832,835,423,549,461,837,833,136,246,548,839,838,468,460,349,459,800,112,834],"class_list":["post-3122","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-culture","category-podcasts","category-show-me-what-you-got","category-street-diamond","tag-afrique","tag-amerique","tag-antilles","tag-apipd","tag-association-drepanocytose","tag-cergy","tag-deezer","tag-dorlis-photography","tag-drepaction","tag-drepanocytose","tag-guadeloupe","tag-guyane","tag-itunes","tag-jenny-hippocrate-fixy","tag-milan-corazza","tag-podcast","tag-radio","tag-reunion","tag-rgb","tag-spotify","tag-street-diamond","tag-zenith-de-paris"],"_links":{"self":[{"href":"https:\/\/streetdiamond.fr\/index.php\/wp-json\/wp\/v2\/posts\/3122","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/streetdiamond.fr\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/streetdiamond.fr\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/streetdiamond.fr\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/streetdiamond.fr\/index.php\/wp-json\/wp\/v2\/comments?post=3122"}],"version-history":[{"count":5,"href":"https:\/\/streetdiamond.fr\/index.php\/wp-json\/wp\/v2\/posts\/3122\/revisions"}],"predecessor-version":[{"id":3493,"href":"https:\/\/streetdiamond.fr\/index.php\/wp-json\/wp\/v2\/posts\/3122\/revisions\/3493"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/streetdiamond.fr\/index.php\/wp-json\/wp\/v2\/media\/3129"}],"wp:attachment":[{"href":"https:\/\/streetdiamond.fr\/index.php\/wp-json\/wp\/v2\/media?parent=3122"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/streetdiamond.fr\/index.php\/wp-json\/wp\/v2\/categories?post=3122"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/streetdiamond.fr\/index.php\/wp-json\/wp\/v2\/tags?post=3122"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}